Wednesday, October 1, 2008

Finally an answer

Today was a hard day, and maybe I'm selfish for being upset, but as a mother when your told something is wrong with your kids, you have the right to be upset, even when its nothing major.

For those of you who don't know Hannah is 4, and has very fine, thin, blond hair that isn't growing like it should. At first I thought nothing of it, it took Jordan until he was 4 to get thicker hair that needed to be cut, but Hannah's has no change, not really at least. It looks the same as when she was 2. It isn't getting thicker, or longer. So obviously I started to get concerned, especially as I got the question "whats wrong with her?" "where is her hair?" "does she have cancer?" or her being called a boy even when she is in a dress. Today we had our appointment with the specialist and found out what is wrong with her, and though its nothing serious it still was hard for me to hear. She is healthy in every other way so for that much I am grateful for but she does have a disorder that causes her hair not to grow, and in fact probably wont ever grow much longer or thicker then it is now.

She has what is called Short Anagen Syndrome. Its not very well known, the doctor told me what he could but I haven't been able to find much online. I do know that its a condition where the hair follicle does not grow like it should. That its most common in blond haired girls, and that in most cases their hair wont grow past the nape of the neck. We have been told some kids seem to outgrow it, usually if this is going to happen between the ages of 5-10, sometimes not till puberty though, but some people don't. There is no cure or treatment for it as of right now and because of the bald look locks of love will give Hannah and kids with this condition (which is grouped together with loose Anagen syndrome) a wig. I guess around the age of 6 they will mold her head and make her a wig if she or we would like her to have one) but we will hope and pray and wait and see if her hair comes in more where we hopefully wont have to do that.

So yeah, its been one of those days. I feel guilty for being upset, I'm glad we know what is wrong with her, I'm glad its nothing serious, but I still feel upset that she wont have hair like all the other girls do. That she will get teased at school for having no hair. It could be worse, I know. I also know that there are many people out there with worse problems, that's why I feel guilty for being so upset over something so small.


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